It’s been a minute, tell me how you’re healin’
‘Cause I’m about to get into my feelings Time for a long overdue update! I thought about writing many times but I’ll be honest, it doesn’t feel great to sit down and try to figure out...
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‘Cause I’m about to get into my feelings Time for a long overdue update! I thought about writing many times but I’ll be honest, it doesn’t feel great to sit down and try to figure out...
We heard back from the team at Texas and have some plans going forward. One very important takeaway is that Max’s seizures haven’t moved to his right side. Everything is staying on his left side. Matt...
No, you’ll just have to wait She said, “love don’t come easy It’s a game of give and take” Waiting is what we’ve been doing and a lot of it. We made it back home from...
Our time at Texas Children’s Hospital has definitely not been boring. Max’s seizures more than showed up to the party: they were the party. Like I wrote in my last update, it’s a very strange place...
We made it to Texas for our 2nd opinion finally! It has definitely been a long time in coming. Not a great time either. We’ve narrowly avoided emergency admissions and tried to stay stable enough to...
We are still at the hospital. Max is MUCH more lucid than he was during the week. They had to use some pretty big heavy hitters to get things to calm down. Max was sedated and...