Here comes the sun, and I say It’s alright
Little darlin’, the smile’s returning to their faces Little darlin’, it seems like years since it’s been here So, it’s been 6 months since I last updated the blog. I have thought about it so many...
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Little darlin’, the smile’s returning to their faces Little darlin’, it seems like years since it’s been here So, it’s been 6 months since I last updated the blog. I have thought about it so many...
We’re back! Not just to update the blog, but also in Texas for a check in with Max’s team. I haven’t updated in a while on here. Here are the major takeaways: When Max was released,...
Friday there was a cancellation so Max’s surgery was able to get bumped up a couple days. We were excited because this is the BIG thing we were hoping for. It probably sounds crazy to hope...
We left off sending Max into surgery to get his grids placed. It was done more quickly than anticipated which was good. We did end up in recovery for 6 hours because our room wasn’t ready...
Our best dude just headed headed back to surgery with Dr. Weiner to get his intracranial grids placed. Hands down, the strongest person I’ve ever met. We’ll get him back in about 8 hours. Here he...
We spent some time trying to chase Max’s bigger seizures and they didn’t show up. I think I’ve mentioned about 5 billion times how strange it is to spend all of our time trying to...
Like a bird in a cage I broke in and demanded that somebody free it Since the last update, Max has been perking up and more and more like himself which has been awesome. He’s been...
I’ll rise unafraid I’ll rise up And I’ll do it a thousand times again And I’ll rise up High like the waves I’ll rise up In spite of the ache I’ll rise up And I’ll do...
So we put our hands up like the ceiling can’t hold us Yesterday was the start of the main purpose of our Texas trip and hopefully bigger and better for our best dude. Max had...
We’re on the move We made it to Texas safely on Tuesday. We brought along Frankie and my mom for a few days to squeeze in some fun and a little family downtime between pre surgical...