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March 28, 2022

By: Peggy Jenner
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“You’ll never do a whole lot unless you’re brave enough to try.”-Dolly Parton

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About Me

Peggy Jenner

Rad mama to two kids, fueled by cheese and caffeine, purveyor of snacks

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Recent Posts

Here comes the sun, and I say It’s alright
This year, I’ll live like I’ve never lived before
“Get up, stand up! Don’t give up the fight!”
My my heart like a kick drum..my my love like a voice
But I promise we’ll take the world to its feet and move mountains

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Joyce Lewis on Here comes the sun, and I say It’s alright
Joyce Lewis on Here comes the sun, and I say It’s alright
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Karen on And I’ll rise up, I’ll rise like the day

anotherpanicmomday

Epilepsy awareness month day 21! A seizure doesn't

Epilepsy awareness month day 21! A seizure doesn't automatically mean someone has Epilepsy. Max's epileptologist is a character and said everyone gets one free seizure. Epilepsy is that recurring part and there are many possible causes. 💪💜🧠⚡

Day 9 of Epilepsy Awareness Month but honestly eve

Day 9 of Epilepsy Awareness Month but honestly every single day we're aware. I can't believe where we are or where we've been. It's amazing, heartbreaking, and humbling to look back at pictures over the last 6 years. I know we've been through it but it's wild to look back through pictures. We had to record seizures for the doctors so it's a mix of terrible replays of those, so many hospital stays( 5 & 6) , and sweet homecomings & reunions between Max and Frankie (8) and sweet video chats while apart (10) picture 7 I can actually feel- that's me ( and Frankie) watching and waiting for Max while he recovered from from a seizure. We've always made sure to keep things as normal and close to typical as possible even when things were anything but. Advocating and educating is very important to our whole family. I've met an incredible network of other people touched by epilepsy and I am always appreciative when our experiences have helped someone get in touch with a doctor and support that helped them. We're grateful to be where we are and never lose sight of where we've been. 💪💜🧠⚡

Day 3 of Epilepsy Awareness Month: Let's talk numb

Day 3 of Epilepsy Awareness Month: Let's talk numbers!! 💜💪⚡🧠
: 65 MILLION: Number of people around the world who live with epilepsy.

3.4 MILLION: Number of people in the United States who have epilepsy.

1 IN 26 people in the United States will develop epilepsy at some point in their lifetime. ( Max & I are two of them!)

BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.

ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.

Our tough kiddo is a part of that 1/3. We had tiny periods of tenuous relief at best but never really stable from age 5 on. We failed countless medications and Max had 10 brain surgeries with no guarantees of anything on the table. Epilepsy research is incredibly underfunded. We had no idea and now we know how much research and funding are desperately needed. 💪🧠⚡💜

Happy National Daughters Day to our best girl, Fra

Happy National Daughters Day to our best girl, Frankiecakes. She is smart, sassy, strong, independent, brave, curious, and loves and lives fiercely! She has the BEST laugh that bubbles up out of her belly like an old man chuckle and gives the greatest hugs. If her mouth doesn't say it, her face will. We love her to pieces and are so lucky she's ours ☘️👧💪🦄🌈💖💎✨🧨

Nature center and hiking adventures #latergram fro

Nature center and hiking adventures #latergram from some scavenger hunting with some of my favorites 🥾🌳🐕🦋🌼

Max is at Owasippe Scout Camp this week and I don'

Max is at Owasippe Scout Camp this week and I don't even have words for how proud I am of him. He's come so incredibly far from where he was ( seizure/ epilepsy/surgery wise) and it is beautiful to see him just do kid things. He has been earning merit badges and achieving milestones that weren't even on our radar when we were just in survival mode for so long. He's chopping wood, moving ( giant) logs, and the kid who has been busting his butt in PT did a 5 mile hike yesterday with no problem and a smile on his face. Matt is holding it down as an Assistant Scout Master and giving Max space to just be a regular kid I've been happy crying over updates when he gets pockets of service. 🌳🪓🏕️🥾🔥

First of many pool days with my two favorite hooli

First of many pool days with my two favorite hooligans 🏊🏻‍♀️🏊🏻‍♂️🌞👓👙

Last day of 1️⃣st grade for Frankie and last d

Last day of 1️⃣st grade for Frankie and last day of 5️⃣th grade for Max! We're ready for summer

Happy 1️⃣1️⃣th birthday to Max! You've bee

Happy 1️⃣1️⃣th birthday to Max! You've been through more than people three times your age but you'd never know it. You're the sunniest kid with the biggest heart. You're always looking for four leaf clovers.( And finding them! )But really we're the luckiest because you're ours. 🥳🎉🎂🍀 We love you Maxaroo! I hope this trip around the sun is full of the best adventures and things you love.

Beautiful day to spend on the farm with some of my

Beautiful day to spend on the farm with some of my favorites! We saw sheep shearing and cuddled baby bunnies, mohawked ducklings, Frankie and Max brushed piglets, scratched donkey chins, and met an adorable baby zebu..🐇🦆🐤🐔🐓🫏🐷🐑

Up in the air on our way to see somebody about a v

Up in the air on our way to see somebody about a volcano! We are beyond excited to be spending spring break in Hawaii granting Max's Make A Wish to see a volcano! It's been 4 years in the making due to COVID and wildfires in Maui. We got picked up at 3:00 this morning and flew to Vegas for a layover and leg stretch. Now we should be on island time by this late afternoon. Shout out to the dog whisperer, Joe for staying with my baby Blue so we can go adventuring! ✈️🌴🌺🌊🐬🌋🌟💫
1.Max got to meet the pilot and see the cockpit - Frankie was invited too but she was shy, sneaky pics of the boys, and the pamphlet that had Frankie convinced they had announcements out for Max today- they did make an announcement that Max was flying into Vegas and to enjoy his trip. 2.photo fun with the blue cabin lights when we were getting cabin fever 3. Gorgeous view 4. 3 am wake up caught up 5. My seat buddy

We FINALLY opened Max's leap year letter from 1st

We FINALLY opened Max's leap year letter from 1st grade! It made the move to the new house and to two schools with him. What a sweet and fun way to go start our Leap Year morning!

November is national Epilepsy Awareness Month! Tog $November is national Epilepsy Awareness Month! Together we can get more children to surgical evaluation by raising awareness about epilepsy surgery, the pros and cons of surgery, and the different procedures that can stop or reduce seizures. I cannot stress enough that epilepsy surgery has saved Max's life and given our family a life worth living. 💪🧠⚡💜🌊 🚨This year a new study showed that cranial epilepsy surgery reduces a child's chances of dying by over 80%! That's why we want all children with drug-resistant seizures to get to a prompt epilepsy surgery evaluation. There are many different surgeries that can help. #EpilepsySurgerySavesLives #epilepsy #seizures #TSC #SEEG #craniotomysurvivor #refractoryepilepsy #epilepsysurgery #cureepilepsy #TLE #temporallobeepilepsy$

Today is SUDEP Action Day, a global initiative whe $Today is SUDEP Action Day, a global initiative where our community raises awareness of Sudden Unexplained Death in Epilepsy. A chilling statistic associated with drug-resistant epilepsy is that 1 in 833 children battling refractory seizures are estimated to die from SUDEP each year. But there's hope! ( Our own Mighty Max is proof of that) Recent research shows that: ⬇️ Cranial epilepsy surgery reduces the risk of death by 83%; ⬇️ Vagus nerve stimulation reduces the risk of death by 35%. There are many different surgical options that can help, each with the potential to significantly improve the quality of life for your child. These sobering statistics and groundbreaking research showing the benefits of neurosurgery are exactly why we pushed so hard to get Max into the very best hands possible. We just quietly celebrated a year of no seizures ( knock on wood!) A milestone we never dreamed of when we started this journey. Max was having hundreds of seizures a day. I truly credit Dr. Weiner and Dr. Curry with giving us our lives and our blue eyed boy back. 🧠⚡💪🌊💜 #SUDEP #SUDEPActionDay2023 #epilepsy #seizures #epilepsysurgery #cureepilepsy #TSC1 #texaschildrenshospital$

One of my favorite places with some of my favorite

One of my favorite places with some of my favorite people.|Morton Arboretum Children's Garden| 🏵️🌼🌻🌺🌸🐸🐢🍄👵👦👩🍋

Max found a 4 leaf clover at the dog park yesterda

Max found a 4 leaf clover at the dog park yesterday! All four of us were very excited about it! Blue was pretty ambivalent ,although he did want to eat it🍀🧲🤞💙🐶

"All my bags are packed I'm ready to go I'm standi

"All my bags are packed
I'm ready to go
I'm standin' here outside your door
I hate to wake you up to say goodbye
But the dawn is breakin'
It's early morn...
So kiss me and smile for me
Tell me that you'll wait for me
Hold me like you'll never let me go
'Cause I'm leavin' on a jet plane
Don't know when I'll be back again
Oh babe, I hate to go"

Max and I are off to Texas on a VERY early flight! It's been nearly a year since his surgery and what a year it's been ( in the best ways for once)! MRI imaging Monday, meeting with our two favorite neurosurgeons Tuesday and then home to our favorites ( 👨‍👧🐶). Hoping to squeeze in some fun too ( checking out the new Galapagos exhibit at the zoo for sure!) ✈️

Max Update! "Here Comes the Sun, and I say it's al

Max Update!
"Here Comes the Sun, and I say it's alright"
https://anotherpanicmomday.com/?p=416
🧠⚡💜💪👨‍👩‍👧‍👦🐶

Max's turn for 🦥 day! 👩‍👦🐢🐸🦔🐥🐤🐣🐰🐇

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