If you had told me two years ago I’d be counting down the days until my baby could have brain surgery, I would have told you that you were crazy. Yet, here we are and even hoping he qualifies for a second surgery. The past two years have been filled with countless seizures, appointments, EEGs, VEEGs, MRIs, CTs, a MEG, an FMRI, labs, failed medications, and by far Max’s least favorite: IVs. Along the way, despite enduring things that would bring most people to their knees ( and on occasion it’s done just that to me), Max has not lost his sunny disposition, sweetness, ability to find joy everywhere, kindness, compassion, curiosity, incredible intelligence, or zest for life. We’ve lost a lot of things on this journey, but you would never know it from his attitude. I can count on one hand the times he’s complained about his Epilepsy or seizures and he has every right to complain. Even the times he’s complained it’s been about wishing nobody had to have seizures or being sad that I’m worried. He is an incredible kid and I am so incredibly humbled to be his mama. He amazes me every single day with his courage, bravery, resilience, selflessness, and bright outlook. I cannot wait to see what the future holds for him and what he holds for the future because he is a world changer. Max may have Epilepsy but it most certainly does NOT have him.
