Don’t stop me now, cause I’m having a good time
Max had his RNS surgery yesterday. It was a long day and if I haven’t said it enough, let me say it again, he is AMAZING! He came through two brain surgeries in one week and...
‘Cause I’ve still got a lot of fight left in me
Tomorrow is the big day. All the data collection between mapping and this point was depending on Max’s brain. The team was able to see and record enough of his big seizures to get the final...
The waiting is the hardest part
When we last saw our hero, he was getting his brain mapped. You might be asking yourself what that is? You might be asking yourself why is that important? And you may ask yourself, “Well… how...
Ablaze
I don’t know where to begin. There’s a lot of waiting but right now even that’s important. On Monday morning we checked in and Max had a marathon of procedures done. First was a surgery to...
While we wait
If you had told me two years ago I’d be counting down the days until my baby could have brain surgery, I would have told you that you were crazy. Yet, here we are and even...