It’s been a minute, tell me how you’re healin’
‘Cause I’m about to get into my feelings Time for a long overdue update! I thought about writing many times but I’ll be honest, it doesn’t feel great to sit down and try to figure out...
Well, we’ll float on, good news is on the way
We heard back from the team at Texas and have some plans going forward. One very important takeaway is that Max’s seizures haven’t moved to his right side. Everything is staying on his left side. Matt...
I remember mama said, “you can’t hurry love”
No, you’ll just have to wait She said, “love don’t come easy It’s a game of give and take” Waiting is what we’ve been doing and a lot of it. We made it back home from...
“You’ll never do a whole lot unless you’re brave enough to try.”-Dolly Parton
Our time at Texas Children’s Hospital has definitely not been boring. Max’s seizures more than showed up to the party: they were the party. Like I wrote in my last update, it’s a very strange place...
Here come bad news talking this and that
Bad news is putting it lightly. Epilepsy has been kicking our butts this week. We stayed at Lurie’s Wednesday into Thursday because Max was continuing to have cluster seizures that were necessitating his rescue medication. Thursday...